An Introverts Guide to Talking about Crohn's symptoms

Talking about Crohns and IBD can feel uncomfortable, even with Doctors. Add in my shyness and an especially the good looking Doctor. The internal cringe is strong. There have been many times when I have wanted to hide in an appointment when I need to talk about bowel movements to a cute doctor. Even with a chaperone present. 

But then discussing bowel movements is uncomfortable for anyone and why I try to say bowel more often these days when talking about my symptoms. Bowel bowel bowel.

Until you get there though here are some tips that have helped me talk about Crohns. And with practise you too will feel comfortable with the word bowel.

1. Note down triggers and symptoms - rather than try to remember what you think may have cause a symptom, making a note on your phone or in a notebook can make an easy reference to talk about your condition with doctors or disability assesors.

2. Practise being specific - If you feel uncomfortable with words like diarrhoea or mucus instead of just saying "I don't feel well" write down your symptoms on your phone or notebook and show that to your doctor. They can read what your symtoms and ask questions if they need to. Just make sure your handwriting is clear or your phone font is extra large.

3. Be Honest - Acknowledge that your symptoms will affect your ability to do things and tell your doctors when it does. Speak to your health care nurse or disability support to get any help you need early. Even about the "minor" changes in your health so your docs can have a clear picture. This helps in asking your doctor for medical letters to clear you for things. I asked for an all clear to travel letter at an afternoon appt and by the next day my doc had sent me my letter. All I did was talk about how I was able to manage my current symptoms. Having treatment in writing and current coping mechanisms helps when you need to visit new doctors and you need to give a history.

4. Ask Questions - If something changes in your symptoms or you want to find out more about your condition asking questions can help you understand IBD more. There are forums everywhere to ask people. Depending on your hospital you may have the nurses email. Drop them a line when things crop up don't wait to see a doc. I know I find it easier to write down my problems than say them out loud. With more knowlege you can gain confidence. And more confidence makes it easier to speak about your condition.

5. Use a Talking Toolkit - Crohns and Colitis UK have created a Talking Toolkit. Very useful when you are struggling to find the words you want to say. Take it with you to the GP or doctor. You can use the list as talking points and it's a great way to ensure you cover anything you are worried about. While you can contact the doctor after an appointment to let them know of anything you missed, it can feel easier to and save time to say it in one meeting. That way you can leave each appointment feeling clear that the doctors know how you are managing, and with a game plan ready between the next appointment